I am 18 years old and I was diagnosed with MHE (a rare bone disorder causing me to have extra bones commonly called bone growths or tumors) at 18 months. I’m the only one in my family with it, so growing up has been tough, especially because I thought I was the only one in the world with MHE.

Then I found the Bumpy Bone Club (an MHE support group) through my doctor in grade 7, and since then I’ve made a ton of friends who have the same medical condition as myself. It’s been interesting talking to people of all ages with MHE, and I decided to make a blog about my life with MHE to give other teens with it someone to relate too and to help make it known. Plus for my own personal reasons; its good having somewhere to let things out.